Zachary is the only known documented child case with Superficial Siderosis and was diagnosed at the age of 9. We've created this blog in hopes of finding more information, and those who suffer with this disorder so that we can further educate ourselves, our son and others.
Saturday, November 19, 2011
Seriously? Enough with the Pain, Already!
Zachary cried in pain this evening and not about his legs this time. It's his back and his stomach, I'm thinking this would be the third time he's had pain in his back. The first time was from the spinal tap, the second time from the CT Myelogram and now it just hurts. Stomach pains are on and off three or four times a week. I put his TENS unit on and gave him a Benedryl, after about 45 minutes he settled down.
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