Saturday, December 28, 2013

Our Appreciation .....




Zachary’s Cakes for Christmas Fundraiser was a huge success! The generosity of others was absolutely overwhelming. We earned near $3,000.00 thanks to all of our family, friends and the community. We would like to recognize all the businesses that donated goods and services to our fundraiser.
Beltone, for giving Zachary a free pair of very nice hearing aids. Zachary now has total control of the sounds that enter into his ears and an FM System that is built right in for him to use while in school. And now the funds raised can be set aside for the Cochlear Implant that will be needed for Zachary’s right ear.
B’s Cheesecakes, Martha’s Chapel Rd, Cunningham
Canyon Road Steakhouse & Beer Garden, Wilma Rudolf Blvd.
Chick-fil-A - for sponsoring Zachary’s cause in a fundraiser held at the Wilma Rudolf location.
Cracker Barrel, Cracker Barrel Dr.
Dairy Queen, Riverside Dr.
George the Cake Guy, Strawberry Alley
GFS, Wilma Rudolf Blvd
Great American Cookie Company, Wilma Rudolf Blvd.
Kroger Bakery, Madison St.
O’Charly’s, Riverside Dr.
O’Charly’s, Wilma Rudolf Blvd.
Rafferty’s, Wilma Rudolf Blvd.
Sam’s Bakery, Veterans Pkwy
Silke’s Old World Bakery, College St.
Union Station Hotel, Broadway, Nashville
... a special thank you to my family in Texas, who rallied together to help our son by having a benefit concert and fundraising Christmas parties.
... and last but certainly not least, thank you Christie Wall for helping us get the word out and getting the media involved.

Again, we can not express the gratitude our family feels for all those involved. Thank you all for your continued support and prayers.

With Much Appreciation
The Huguley Family

Friday, December 27, 2013

An Adjustment



Zachary was having a little trouble with the fitting of the ear molds and Beltone graciously adjusted it for him. Just over the past few months I've seen the Lord's hand in our lives, He is ever mindful!!

Tuesday, December 24, 2013

Merry Christmas!!



Zachary received his new hearing aids today. We are forever grateful for the generosity Beltone has shown Zachary. He is so happy and now has total control of what sounds he hears. The simple gift of hearing independence has brought our son joy in a time of adversity. We can not express it enough..... Our Father in Heaven is so ever mindful of each of our needs. He knew that I needed to see that Z can still become and do anything he desires and with this simple blessing I was able to see not only that but I also see that in times of adversity he brings blessings to help us press forward.

Friday, December 20, 2013

Another Frequency Gone ...sniff

Took Z to the Audiologist yesterday, she said he is getting close to meeting the requirements for a cochlear implant in his right ear. He has lost yet another frequency.  The first test was done on the 2nd of December and the other just yesterday.


Friday, December 13, 2013

A Huge Success!!

The fundraiser last night was a HUGE success!! It was amazing!! Tears welled up on several occasions and the generosity of others was absolutely overwhelming. We earned a total of $2,455. Again, we can not express the gratitude our family feels for all those involved. 
Thank you all for your continued support and prayers. 
With Love
The Huguley's

Tuesday, December 10, 2013

A Fundraiser for "The Gift Of Sound"

We are trying to raise funds for Zachary in order to provide hearing aids for him. Please follow the link below if you would like to give Zachary the gift of sound before Christmas.

LINK: The Gift of Sound

Thank you in advance,
The Huguley Family



Information About the Fundraiser

Cakes for Christmas ... and other things
Gift Basket Silent Auction
Helen's Art - www.capturedmiracles.org
Photography Mini Sessions
Christmas Cards & Paper Crafts
Jewelry
Pampered Chef
Doterra - Essential Oils
Z’s Friends - Artwork from Z’s friends

Cake and Gift Basket Donation Drop Off 
is from 10am - 2:30pm 
December 12th 
at the Smith Trahern Mansion 
If you have any questions you can message me at the email that is listed in the flyer.




Monday, December 9, 2013

Hearing Aids .... Check!! Cochlear Implants???

We can not express the gratitude we have for all who are helping us raise funds for Zachary. After the newspaper article ran in the Leaf Chronicle, I received a call from the journalist who asked me to call Andy Stewart with Belltone Hearing. I was informed by him that his company would like to donate hearing aids for Zachary for Christmas. I was in shock and could not believe it. I held back from sharing this because I wanted to be sure I wasn't dreaming and it wasn't some sort of gimmick. After talking with Dr. Levy I found that they were very serious and want to help Zachary by donating hearing aids that will work for him. We are truly blessed!!
Where are we now? We are still trying to raise funds for Z and bring awareness to this debilitating disease, 95% of those who suffer with Superficial Siderosis lose their hearing completely and end up with Cochlear Implants. Our focus now is to raise money for that. Zachary is losing the hearing in his right ear very quickly and hearing aids will be of no use to him, I predict very soon.


Hearing Test from December 2nd. The red line is the right ear the blue line is the left ear.


Dr. Levy putting Silicone in Z's ear so a mold can be made for his hearing aids


New earbud style? Maybe? Ummm? Maybe not ...