I'd like to call this one of my most difficult and heartbreaking days. Today we sat our son down and explained the ins and outs of Superficial Siderosis. We explained what was going on in his tiny little body, what exactly it was that was causing his hearing loss and what the future holds for him. I've had to go through and do a lot of hard things but I can not think of anything that comes even close to this. As we sat and talked and discussed these things I could see him trying hard to hold back the tears. I watched as they welled up in his eyes. When the conversation was done and his questions were all answered. We hugged it out and he went off to do his chores. I went down shortly after him and noticed he had taken his clean basket of clothes into his room. When I opened his door he sat knelt over the basket with his head in his clothes crying. I went in sat closely next to him and just held him for a while. Then I told him how special he really is. I told him that his Father in Heaven loves him and is always with him. I told him that He never brings him to something without bringing him through it. And I reminded him that he has family and friends who are all pulling for him and praying for him. He just wept, it absolutely broke my heart.
I'm thankful for the love of our Father, who knows our strengths and our weaknesses. He knows what we can and can not handle. I felt His warm embrace as I sat there with His son in my arms crying at the reality of his disease. HE LOVES US and is ALWAYS WITH US and for this I am truly grateful.
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