Zachary is the only known documented child case with Superficial Siderosis and was diagnosed at the age of 9. We've created this blog in hopes of finding more information, and those who suffer with this disorder so that we can further educate ourselves, our son and others.
Friday, February 17, 2012
Another Pick Up
Picked up Zachary from school around 12:45 or so because he was experiencing enough pain that he was willing to give up a sleepover with his friend. After picking Z up we went over to my friends house so I could help her out with a photo shoot and her husband helped out by giving Zachary a "bear hug" which brought his pain level back down. I seem to be having trouble with it working, I think I'm nervous about squeezing to much and hurting Z. After the "bear hug" Zachary's pain lingered between a 1 and a 4, which isn't to terribly bad we would rather he be at zero but we're grateful he didn't get past 7.
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