Dr. Jordan
Yes, we were hoping the orthopedist would find something too, We were quiet disappointed that he wasn't prepared, nor did he come through as we had hoped. We figured he would be the one to see the misalignments. We're pleased that you feel that this is working better for Zachary. We're glad that he has seen so many "zero's" (pain scale) in such a short amount of time. This is what we were hoping for. We would still like to have that MRI done in May to see the difference this makes, plus would like to see what affects have been made on that collected fluid at the base of his cord, as we had previously discussed. The Digital Motion X-Ray is only a back up option if Zachary doesn't show any improvement. So far tho ... Z has shown improvement on his posture, he still scuffs his feet but not as badly. And he is already starting to hold his head upright. We pray that this continues to help Z improve but are prepared if it dead ends on us. We want you to know that we are very pleased with all that you have done to help Z and want to continue to work with you as far as Zachary is concerned, we are still concerned about the SS and how Dr. Brown's work will affect it.
Michelle
Thank you, Mrs. Huguley for the update and for your kind words. I have spoken with neurosurgeons here and at Johns Hopkins. They don't feel Zachary is a good candidate for neurosurgery for his arachnoiditis. They mentioned that a repeat high resolution MRI of the spine would be helpful to them to be definite on the surgical issue. We planned to do a repeat MRI spine and spinal tap with fluoroscopy (like we did last time) this spring for monitoring. I will make sure that this is high resolution. Please let me know the time-frame that you would prefer to having this scheduled. (I am comfortable with March - May, 2012). Thank you.
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