Michelle and Robert,
I too have been wondering how Z is getting along.
Further to Dr Levy's comments not everyone has a loss of hearing as
their first symptom of SS. Some people have quite weird first
things, so you should be ready for anything on that 40 plus list. Also
bear in mind that 5% of SS'ers in past medical research notes do not
loose any hearing at all so being set on hearing alone can be a big
fall-on.
In other words be ready for absolutely anything.
All the best to the whole family
Dave
In case you're wondering Dave Hill runs an online support group for those who suffer with Superficial Siderosis. He is in contact with people all over the world.
Superficial Siderosis | A site for survivors
superficialsiderosis.wordpress.com/
No comments:
Post a Comment