Definitely Experiencing Hearing Loss

Audiologist said that Zachary is definitely experiencing hearing loss and wants us to bring him back to be tested again by a pediatric audiologist that she works with to make sure they are seeing the same thing and then wants to test nerve function with a machine she shares with another audiologist. She'd like to have this done before the end of the month. She was an awesome doctor. I told her about the Superficial Siderosis. She totally looked it up and studied it for about 15 minutes. She said she had never heard of it before. I like doctors that listen and take the time to study up on their patients.

Zachary was at a really good part of his book he didn't want to be left with a cliffhanger when the doctor called him back.

Z being tested, I asked him if he was ready and if he studied he said he didn't get a study guide.

Into the silent room he goes! 

The Results! 

  

Dr. Beth Smith advised me to go to the school and ask about their hearing loss services and reccommend an FM System for Zachary to use. I got the ball rolling over at the school today.

Hearing loss is the most common symptom associated with Superficial Siderosis. The research that I've done, hearing loss doesn't occur until age 40 plus, however we are in uncharted territory as Zachary is the only documented child case with SS. 

You know with the news of Z losing his hearing, there were some pretty serious emotions going on today, mostly from me. Zachary? He's so laid back and just goes with the flow, he doesn't really seem to concerned about it. Then today after years of trying to ride a bike. Today, the Lord sent us a Tender Mercy! Z was able to balance himself enough to ride a bike. Whoo Hoo! I just couldn't hold back the tears. Nothing is more rewarding than to see your child that happy. I'd like to pocket this memory, for it was definitely a good one.