We saw a specialist (orthopedist) to start because of the excruciating pain that Zachary was experiencing she diagnosed Z with a bone infection then after treating the "so called" infection we are told that no, it is not a bone infection but seems to be hamstring contractures. Then we start going to physical therapy to help stretch the muscles causing the contractures. Then his therapist notices that there is more going on than contractures, there's something causing immobility in his back and referred us to a sports doctor who does an MRI and finds that in fact there is inflammation at the base of Z's spine and then he refers us to a neurologist who diagnoses him with Superficial Sideosis and our goal is to find the leak that is causing the inflammation which in turn is causing Z serious pain. Then when what we think is the culprit and cause to all of Z's troubles we find that there is no way to repair it and that the immobility is being caused not from the superficial siderosis but from something else and whatever it is it mimicks another disease or disorder and now we are being referred back to the same doctor we started with who misdiagnosed Z twice. We've come full circle and now .... Sit and wonder about whether or not we should grab all our previous tests and get some other opinions or not. Rolling eyes! It's sooo .... Flipping' aggravating!
And let's not forget that this morning our son was in pain and had to have his TENS put on and a Benedryl to get him through church. I think I'm coming to the end of my "patient rope" nothing upsets me more than to see my son in pain and I have no power to cease/stop it.
I think if I were you, I would grab those records and get a totally new set of doctors! It never hurts to get multiple opinions. If you can, go to the top doctors and hospitals. I know that would be expensive though. Anything medical is ridiculously priced. I am still keeping you guys in my prayers. Hang in there. :o(
ReplyDelete