Saturday, February 4, 2012

A Letter to Dr. Jordan, Mishap at School and a Letter to Dr. Levy

Dr. Jordan

We were disappointed in the orthopedic specialist that you sent us to, he was unprofessional in our opinion. He didn't know why we were there and hadn't even read over our son's file before entering the room. He said he needed X-rays, I tried to tell him that Zachary has had X-rays before but he just blew me off and went ahead with the X-rays anyway, without explanation.
We are pleased to know that Zachary's spine is healthy, however, we are still wanting to know why Zachary is experiencing mobility issues? Is it the SS that is causing it? The pain? SS? or something else?How can we control the pain better? What's our next step?

Note: Zachary had only one pain free day in January.

We were wondering if you could request Zachary's medical records from Texas Children's Hospital (Aug 25 2006) so that they would be together with his files here.

Thank you for all you do!!
Michelle Huguley

Just got a call from the Elementary School, Zachary is soaked! Some kid pushed him into a mud puddle! I had to run over and give him some dry clothes, poor guy! The Principal is taking care of the little bully! Good thing, wouldn't want this momma taking care of him.

Dr. Levy

The Ferriprox? What side affects have been documented thus far? Would it control the inflammation?  We just want Zachary to have more pain free days. He only had one pain free day in January, he was so ... happy. We sure would like to see him have more days like that.

His mobility issues could not be linked to the bones of his spine. What else do you think could be causing this issue?

Thank you, for allowing me to ask so many questions
Michelle Huguley

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