Zachary is the only known documented child case with Superficial Siderosis and was diagnosed at the age of 9. We've created this blog in hopes of finding more information, and those who suffer with this disorder so that we can further educate ourselves, our son and others.
Sunday, February 19, 2012
Pain at Church
Zachary's pain got up to a 7 at church today ... when it gets this high it is very hard for Zachary to sit up he is more comfortable laying down or curling up somewhere.
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